Showing posts with label Parkinson's. Show all posts
Showing posts with label Parkinson's. Show all posts

Wednesday, August 14, 2024

Book Review - Mary Roach's Stiff

Stiff by Mary Roach
Published by: W. W. Norton Company
Publication Date: April 17th, 2003
Format: Paperback, 303 Pages
Rating: ★★
To Buy

What happens to us when we die? That is what Mary Roach is interested in. And not the big philosophical questions, those are reserved for her second book, Spook. Here she delves into the meat of the question. What happens to our bodies when we die? And she means bodies. When we are no more than a corpse. The thing is, corpses are a very valuable tool. There are things that can't be learned about the human body while we're alive and therefore bodies are quite prized. Research and experimentation are key to knowing how to help us live and live longer and live better and live safer. But due to cultural beliefs experimentation on human remains has been a taboo for a long time and in some cases still is. This led to a lucrative rise of body snatchers. Bodies were in demand and medical students needed access to bodies, therefore these rather odious resurrection men were in high demand. Thankfully over time people have realized the importance of leaving their bodies to science. And Mary Roach was touched by the respect the students at the University of California, San Francisco, had in their gross anatomy lab towards their assigned cadavers. In fact much of Mary Roach's investigations revolved around institutes for research and therefore she spent a lot of time at universities. At Wayne State University they use bodies to test crash impact. Many view this as beyond what is acceptable to do to a corpse. But how are we to survive crashes unless we have some way of knowing how they affect the human body? These bodies and the scientists behind the studies should be commended for their work. And how about the research of human decay? This is invaluable to the study of forensics and in catching killers. The University of Tennessee does field research on just this subject. And by field, it's literally a field with corpses in different states of decay in different situations. It's like Disneyland for people who love CSI. And then there's the Harvard Brain Bank, where they study neurological diseases. This kind of research will be necessary to the understanding of Parkinson's. The human body can tell us so much, the question is, can you help in that study? Because people handle grief in their own ways and at the end of the day it's what those you leave behind need as well as your own wishes.

There was a time when I thought I would totally be a pathologist. It was medicine but without having to deal with the living and instead dealing with the mysteries of the dead. This career path was spurred on by watching way too much CSI and reading Michael Crichton's early works. So, given this possible career path I thought I would love this book. I didn't. And I didn't like Mary Roach's Spook which I had previously read and should have loved. I mean, come on, it's all about the supernatural and faking ecoplasm and giving birth to rabbits. I'm pretty sure that book talked about the rabbit lady. I double checked and yes, Mary Toft is mentioned in Spook if you need to learn about this famous hoax which I believe is even mentioned on an episode of What We Do in the Shadows. I can't confirm that right at this moment but I'm willing to go rewatch that entire show if you really need to know. Leaving the rabbits alone, what all this has done is it has led me to the conclusion that Mary Roach is not for me. I just don't like her writing style. It's inconsistent section to section, making it feel more like a short story collection by various authors, which as you should know by now, I'm not a fan of. The corpse research station was interesting. As was the Harvard Brain Bank. Which I really was interested in given that my mother had Parkinson's and that perhaps her suffering could help find better methods of care because if not just for me this needs to be assiduously studied for future generations. But then that Harvard morgue scandal broke, but the AI overlords are telling me that the brain bank isn't associated with the morgue... But that doesn't mean I trust them. But I wouldn't really trust any university with my money let alone my brain because stewardship is out the window at the moment and it's all about appropriating funds for pet projects and their own glory. And again I have become sidetracked. Yet that is fitting for this book, it's a common theme disjointedly told. Also is this really supposed to be humorous? I mean really!?! And to say the book is both "lively and fresh" ugh no. At least this is one author I can write off. She's just not for me.

Wednesday, November 25, 2020

Book Review - Frances Hodgson Burnett's The Secret Garden

The Secret Garden by Frances Hodgson Burnett
Published by: Everyman's Library
Publication Date: 1910
Format: Hardcover, 318 Pages
To Buy

Here's a not very secret secret I'll let you in on, I hate The Secret Garden. Love the concept, love most of the adaptations of it, hate the actual book and the pompous little shits Dickon, Mary, and Colin. They are spoiled obnoxious brats who happen to be cruel and taunt the locals by imitating their Yorkshire accents. So if you're into books with kids who have cold-blooded superiority in their hearts this book is for you! And yet it is easily one of my mom's favorite books. I'm not saying she necessarily found the children's bad behavior amusing, though that could have been a factor, I know it would have bemused my paternal grandmother, I'm saying she loved it for the garden. My mom loved her garden, an inheritance from her own mother. She spent years getting it perfect, making it all the more sad when her Parkinson's made it impossible for her to work in it. When we were recently moving I found several photo albums of our garden during different years. All those flowers brought to life and loved, from those that were at the house when we moved there to those transplanted from other family gardens and loved for their ancestry. Therefore her love of The Secret Garden makes sense, a perfect garden tucked away that is all your own. She collected many editions because she adored the illustrations of all the different flowers. Her favorites were those done by Tasha Tudor and Inga Moore. At one point I suggested culling her numerous editions and she agreed as long as we kept the ones with the best illustrations. I think maybe one left our shelves that day.

Friday, January 16, 2015

Book Review 2014 #5 - Terry Pratchett's The Last Hero

The Last Hero: A Discworld Fable by Terry Pratchett
Published by: Gollancz
Publication Date: October 18th, 2001
Format: Hardcover, 160 Pages
Rating: ★★★★★
To Buy (different edition than one reviewed)

In Discworld, more then most places, what we take as myth is more literal. In the beginning, the great hero Mazda, maybe known elsewhere as Prometheus, stole fire from the Gods. Well, Cohen the Barbarian and his Silver Horde have grown wealthy and old in the hero business themselves, but they don't like the old part, in fact, they have a beef to pick with the Gods about the whole "old" situation. So they've decided to return Mazda's ill gotten gains. With interest. The problem with most heroes though is they don't realize that sometimes their actions have consequences. The consequence of them going to the home of the Gods is that Discworld will cease to be. The Wizards bring this outcome to the attention of Lord Ventinari who quickly gets all the Disc's best minds, including Rincewind to his own dismay, to find a solution. Yet no one seems to be asking the obvious question. What if this is just another game the Gods are playing, and what if it's revenge for all those temples these so-called heroes sacked?

In Neil Gaiman's introduction to A Slip of the Keyboard he says that "Terry Pratchett isn’t jolly. He’s angry." This to me is the truest thing I've read about Pratchett. Some might place him in the jolly elf category, but to me he is in the cantankerous wizard one. When I met Terry Pratchett he reminded me of someone very close to me, my mother. Like Pratchett she is ill and old before her time. She survived two rounds of cancer in my childhood to have Parkinson's arrive early because of the chemo that saved her rapidly aging her body. Here are two people who know the truth that life isn't fair. You might have a good life, you might have a bad life, you might have an easy life, but in the end death comes for us all. The indignation of the Horde at this universal truth is both poignant and relatable.

While this book was written prior to Pratchett's diagnosis of early onset Alzheimer's he understood how the world works so it seems even more of a cruel joke that this would happen to him. One wonders if he has railed against the Gods as his heroes did. Because what would you do if you could actually accuse the Gods of being unfair? Would you gather yourself a posse and head into Mordor with a keg of explosives? The anger just sparks off the page at the unfairness of life. This will to live, this rage, fuels the book and makes it more vital and alive then any book I have read in a long time. It might be about turtles and wizards and old men who were heroes in their day who want sagas written about them, but the human truth behind all that pageantry is what makes Pratchett's books so universally wonderful, if heartbreaking at the same time.

Though Pratchett isn't one to not let the Gods have a say. Sure they might be blind and think of people as pawns in their games, but all the Gods live together and therefore have similar vested interests. It would be like Jesus hanging out with some Egyptian Goddess like Isis, with a few Roman and Greek deities on the side. All Gods, while not necessarily equal, are aware of each other and take an interest in what they each do. So to look at the "heroes" from their point of view, they see a rag tag group of people who have spent their lives looting and pillaging their temples and places of worship. They might be heroes to us mere mortals, but to the Gods, they are a nuisance, and Pratchett is will to show us this in all his irascible splendor.

But in amongst the hard truths Pratchett peppers his story with little asides, little jokes, that if you get them they're wonderful. Besides the battle of Gods and man, here he takes aim at the space program, Leonardo da Vinci and his inventions, science, but my favorite of all was the discussion of Schrödinger's cat. This is a quantum-mechanical paradox wherein a cat is placed in a box with a substance that may or may not kill the animal. The cat being in the box and unable to be observed means that the cat is both alive and dead simultaneously. It is the observation of the cat when the box is opened that determines the cat's state of being. DEATH and his manservant Albert get into an argument about this theory. Albert is trying to point out the two states of simultaneous being while DEATH just thinks it's cruel to the cat, and anyway, he's DEATH so he'd be aware the instant the cat died, and therefore it makes no sense to him. This scene is worthy of a vaudeville stage and top billed act with the subtlety and wit. Priceless.

What sets apart The Last Hero from any of Pratchett's other books is that this is an outsized format with beautiful illustrations by Paul Kidby. While I actually have many issues with the layout of the book, text lines being set too long, sepia drawings not getting the attention they deserve being set behind type, drawings badly placed within the story (ok, the graphic designer in me will stop now), the illustrations add so much. Kidby has this way of channeling Pratchett so that his drawings sync up with the images that have always been in your head. You see this picture of DEATH with one of his beloved kittens and you think, yes, that's right. Carrot Ironfoundersson has proved difficult to dream cast, like I am wont to do, but there he is rendered flesh by Kidby's pen! I hope this symbiotic relationship lasts for many years, and above all I am grateful that the US Publishers have FINALLY started to release Pratchett's books with Kidby's covers stateside. Why would you do otherwise?

Wednesday, November 20, 2013

10th Doctor Book Review - Gary Russell's Beautiful Chaos

Beautiful Chaos by Gary Russell
Published by: BBC Books
Publication Date: December 26th, 2008
Format: Paperback, 242 Pages
Rating: ★
To Buy

Donna has asked The Doctor to take her home so that she can be with her mother for the anniversary of her father's death. The Doctor doesn't really do families well so he tries to stay out of the way of the bickering that ensues once the Nobles gather together. Plus, The Doctor has always gotten on well with Donna's granddad, Wilf, so it's easier to just spend time out with him in the allotment looking up at the stars. In fact there's a few new stars in the sky. Wilf was the first to find one of them and he's getting a dinner in his honor which he hopes The Doctor will attend. The Doctor doesn't seem so fussed about the dinner, but the other new stars, the ones that seem to be coming into alignment, well, they worry him.

At the dinner the other astronomers are grating and Donna is actually a little relieved when Wilf's lady friend, Netty, has an episode. Netty is dealing with Alzheimer's, which means that Wilf and Donna's mom are also dealing with it. Yet when The Doctor fully realizes the impact of the alignment, he has an even better excuse to leave the dinner, Donna in tow. With a cunning use of computers, astrology, genealogy, and astronomy, an old evil that The Doctor has faced before is going to use the human race to launch it's empire across the stars. Something The Doctor seriously wants to avoid happening.

I don't like to read about illness and despair, I have enough of that in my own life, thank you. This isn't the place to talk about it really, but I must touch on the issue so that you'll understand why this book made me want to get up in the author's face and explain a few facts to him, possibly with my fists. When I was in grade school my mom had two bouts of Cancer, which she survived. Though surviving took a toll. The chemo and other therapies sped things up so that while she is only thirty years older than me, her body thinks it's really fifty years older than me, which makes her the same "age" as when her mother got Parkinson's. My mom has Parkinson's. This is a daily struggle. Therefore, I think you can see why I use reading as an escape. I want to be anywhere and anywhen then here, and a book that dwells on these issues, no thank you.

While Russell's use of an incurable illness, in this case Alzheimer's, as the real evil is apt, he goes too far into the braveness of the battle. Netty dealing with her chronic illness bravely and nobly (sorry, I HAD to use that pun) just felt like some sort of propaganda for dealing with this kind of crisis in a stiff upper lip, keeping up appearances way. The message was heavy handed. People who talk about fighting this kind of battle as "brave" or "courageous" just make me want to scream. These are platitudes designed to make you, yeah, you, the one who doesn't have to deal with this shit better. To people in my position, well, it makes me want to punch you. Do you all not understand that there's your public face and your private face? That there's what you should to the world, what you show to the patient, and what you show to yourself? Yes, sure, I guess we could say that at least Donna's mom deals more with the reality of all this, but in the end, no, she doesn't because Netty joyously declares that she wants to go into a nursing home. Please (insert me rolling my eyes)! Show me one person out there who's like, "Nursing Home, SIGN ME UP!" No one will even want this, even if they know they can't handle their life in their current environment. My great aunt, she's 89, and she's steadfastly vetoing any kind of help or assisted living. And she's just the most recent of my family members to do this.

I had such hopes for this book because Donna Noble is my favorite companion in the new series, hands down, perhaps even in all the series. When The Doctor lost Donna, that was really the end of this Doctor. His life after that was filled with sadness and loneliness. The heartbreaking scene when Donna has to have her memory removed has taken on a fuller life her and made into a staggeringly heartbreaking novel. By bookending a story about Altzheimer's with Donna's own memory lose, it's a punch to the gut, that's what it is. But more then that, by showing the struggles that Donna's mother and grandfather are going through, it makes Donna's decision to travel in the TARDIS seem callous. Russell has taken my favorite character and put a spin on her that I don't like one bit. If I where just to say, fuck it and up and leave, well, I don't know what would happen, and that's a fear that I live with all the time. I admired Donna before, now... now I see someone in my position being heartless and unfeeling. Ug, just someone, remove this book from my mind, I want my Donna back.

As for the "plot," well, take out the struggle with family and illness and do we really even have much of a plot? No we don't. The author has made a flimsy story about Mandragora returning, which, for those of you not inculcated into every medium The Doctor appears in, television, written, and audio, well, you might be more then a little lost, but Russell doesn't seem to care or even want to explain for those new to this evil. Not every reader knows everything Doctor Who! A book like these needs to be written for all levels of readers. Also the evil computer/world domination bid with some little kids helping out, well, it made it more like a saccharine episode of The Sarah Jane Adventures if it had be touched up by Michael Crichton. Also, the Doctor is more then a bit bitchy and down on humans, oh, and, seriously, authors, don't have the title of your book used like fifty times throughout the story, it's annoying. Ok... I think my rant is over... can't be sure, these episodes are unexpected, much like Netty's... gaw, Netty...

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